Over the time Kim has been in hospital. We have been looking at getting Internet for Kim. Shell has been talking Sensory Inclusion Service (SIS) about the technical side as they have a department on the hospital site. Unfortunately dial up over a fix phone line is not possible.
They talked with the Shropshire deaf children society (SDCS) about the problem, and SDCS have decided to by a loan laptop for use by deaf children. They are adding a USB mobile dongle that we will top up with data credit.
You really don't know what this means to us. Kim can communicate with us, her friends, with the world. Letting her reach out side the confines of the cell, sorry isolation room. Being able to chat online with her, means her mum is only a click away, and for a teenager that can be a godsend or a cures. For Kim I think it the first of the two.
It is going to be a week or so before the laptop arrives, and Kim is looking forward to it. It is nice to see something other than sadness, tiredness or just fed up look on her face.
You got to hold on to the little thing like that look.
Kims present to herself
With Xbox 360 in hand I headed into see Kim. She had paid for it out of her own money as an early Christmas present to herself. We had just gone out and got it for her. Tested it as all the equipment being used in the hospital has to be PAT* tested, and clean it down so it has as little bug on it as possible.
It been a couple of days since she should have been out, her white cell count is still too low. The doctors hope to have it high enough for Kim to be out for Christmas. Which will be good, she loves her Christmas dinners, and she complains about the hospital food.
As I walk thought the door into the cell, Kim looked down. I think I would be too if I had to look at the same white walls for 26 days. She see the Xbox and brightened a bit. We get chatting about things as I unpack it. As my back was turned Kim asked "Dave, I know you don't bet but.......
Right back to the posting
with the Xbox installed and Mamma Mia in the CD drive, I collect the dirty washing and head off to the car park, with the bet with Kim heavy on my soul. I know its hard but I hold out hope.
Seeing Kim down like that and thinking in that way make me feel even more down than usual.
*Portable Appliance Testing, a test to check that electrical equipment is safe to use.
It been a couple of days since she should have been out, her white cell count is still too low. The doctors hope to have it high enough for Kim to be out for Christmas. Which will be good, she loves her Christmas dinners, and she complains about the hospital food.
As I walk thought the door into the cell, Kim looked down. I think I would be too if I had to look at the same white walls for 26 days. She see the Xbox and brightened a bit. We get chatting about things as I unpack it. As my back was turned Kim asked "Dave, I know you don't bet but.......
screech of brakes. Everything freezes. I turn from my PC screen to look at you.
Hello dear blog reader, hope you are all well.
I bet you are wondering why I stop this posting mid flow.
Well I'm in a dilemma
The next bit is Kims thoughts and feeling about someone, and I believe that at this time putting it on the blog for all to see will cause pain and hurt to them.
So I have decided it is best to leave it between the 4 people that know about what happened next.
Apologizes, but I have not made this decision lightly.
Right back to the posting
with the Xbox installed and Mamma Mia in the CD drive, I collect the dirty washing and head off to the car park, with the bet with Kim heavy on my soul. I know its hard but I hold out hope.
Seeing Kim down like that and thinking in that way make me feel even more down than usual.
*Portable Appliance Testing, a test to check that electrical equipment is safe to use.
and the white cell counts are in....
Kim should be coming home for a break before the next lot of chemotherapy, but her white cells are have a different idea. They are not building up as quickly as thought. With the white cell count being so low it would be dangerous even suicide for her to come home.
The chemotherapy damages the white cells hence thecell isolation room, to protect from infections during the treatment, and a low white cell count means that there is low or no defence against infection.
Kim was not that pleased that her cell count was keeping her from escaping the cell. She was desperate to see billy her chocolate Labrador, her mum and eat some decent food.
As I left her that night she was down, consoling herself with the DVD of Mamma Mia I had taken in that day.
I sat in the landrover, as it felt like someone was cheese grating my heart and soul. It was a bit more than just a single tear tonight.
The chemotherapy damages the white cells hence the
Kim was not that pleased that her cell count was keeping her from escaping the cell. She was desperate to see billy her chocolate Labrador, her mum and eat some decent food.
As I left her that night she was down, consoling herself with the DVD of Mamma Mia I had taken in that day.
I sat in the landrover, as it felt like someone was cheese grating my heart and soul. It was a bit more than just a single tear tonight.
whats that rattling?
Get up
Work
Home
Food
Visit Kim
Bed
And repeat.
I had just finished a week of the above, it is Friday 28 November, time to head off to visit Kim She is on so many tablets that if she had the energy to jump up and down she would rattle*. And a lovely cream for the rash that appeared 4 days ago.
It was washing swap day, so I had a bag as big as Santa but I was the other end of jolly and 4 Sponge bob DVDs. Although 16, she is a bit of a big kid when it come to sponge bob.
After cleaning hands apron on,etc. I get into the room.
Kim is now bald, or as she said “I'm a slap head” I turn around from putting the bags down to get a shock, A Wig waved in my face, with the word “Im not fucking wearing this, it way too itchy!”
it's a nice wig, well made. Shame her skin is become really sensitive to wear it, this is one of the side affects what is part and parcel of this aggressive treatment. Her skin was blotchy and sore, a sore that look akin to a cold sore was making a appearance on her top lip.
After a bit of a chat, I headed for home. I have to pull in before I left the car park. It had only be 23 day from that horrible night and my heart and soul is being hit hard by seeing this happen to her.
*Ok, maybe not but she is on 8 tablets a day.
Work
Home
Food
Visit Kim
Bed
And repeat.
I had just finished a week of the above, it is Friday 28 November, time to head off to visit Kim She is on so many tablets that if she had the energy to jump up and down she would rattle*. And a lovely cream for the rash that appeared 4 days ago.
It was washing swap day, so I had a bag as big as Santa but I was the other end of jolly and 4 Sponge bob DVDs. Although 16, she is a bit of a big kid when it come to sponge bob.
After cleaning hands apron on,etc. I get into the room.
Kim is now bald, or as she said “I'm a slap head” I turn around from putting the bags down to get a shock, A Wig waved in my face, with the word “Im not fucking wearing this, it way too itchy!”
it's a nice wig, well made. Shame her skin is become really sensitive to wear it, this is one of the side affects what is part and parcel of this aggressive treatment. Her skin was blotchy and sore, a sore that look akin to a cold sore was making a appearance on her top lip.
After a bit of a chat, I headed for home. I have to pull in before I left the car park. It had only be 23 day from that horrible night and my heart and soul is being hit hard by seeing this happen to her.
*Ok, maybe not but she is on 8 tablets a day.
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